Better and better

ALEX
In just two weeks, Our amazing Alexandria has indicated awarness of us, of her friends, of others. She has given thumbs up, opened her left eye and
semi opened her right eye. Her lungs have healed and she is without any assisted oxygen for upwards of 8 hours a day. She is tenacious, fighting her wrist restraints to the point of sweating. She meets milestones moment by moment and is amazing! Today she was a bit more tired, probably the difficulty of working with Occupational Therapy two days in row. The past two days she has been hoisted upwards to a sitting position and asked to respond to more commands. She is yet unable to hold herself up, but she seems to enjoy the opportunity to try and is responding to commands. She is better and better every day in every way.

OVERALL
Two weeks ago today, we arrived in this land of tubes and needles, with doctors that walk their rounds so fast -I need to a doctor trap to catch one (what might be good Doctor bait?), a land of capable nurses dressed in black, caregivers dressed green, bleeps, blips, frightning alarms through the night and a barrage of medications I can hardly name. I learned my way around one of the biggest hospitals I never wanted to see. I/We have been provided lodging concessions at the Ronald McDonald House and through the kindess of others are sustained. I am more adapt daily at manuevering around this world, more confident about asserting myself to better ensure Alex's rights and comfort. Despite all this, I refuse to grow comfortable. This is a temporary place of healing, appreciated for its purpose but meant to leave rapidly. The sooner we leave ICU, the better.

HER THOUGHTS...maybe
She seems frustrated and far more aware than we can even yet assess, She is brain healing, pulling functions back into order, resetting her software. She never liked being controlled so from her perspective, those wrist restraints, the tube feedings, it all sucks and yet it is the ultimate test of her patience, I know it is of mine.